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About Thalassaemia Australia
Australia is the new name adopted by the Thalassaemia Society of Victoria. It
was chosen to convey, the broader nationwide outlook the Society has taken on
The Society, now operating under the
Thalassaemia Australia (TA) banner will continue to represent the interests of
all people in Australia affected by thalassaemia, either directly as a patient
or carrier, or indirectly as a family member, carer or colleague or medical
professional. TA will work towards extending its scope of operation nationally,
but always in consultation (and where possible) in collaboration with other
state societies in order to develop a cohesive and united thalassaemia voice.
current constitution of Thalassaemia Australia does not automatically recognise
members other state societies, unless they seek to become an individual
member. Membership of Thalassaemia
Australia is open to any person residing anywhere in Australia (this includes legal persons such as other
Australia's objectives are not to duplicate services offered by state
societies, but to assist and support state societies and provide a national
key role of TA is to provide community education and information on thalassaemia
and related haemoglobinopathies across Australia. Our focus remains in Victoria, where we have
a Service Agreement with the Victorian Government. Where appropriate, information will be shared
with other state associations and provided in a manner that is relevant
throughout Australia. Information
exchange will be actively pursued, and support to other state associations will
continue to be provided. Where state thalassaemia associations are not active,
Thalassaemia Australia will respond to the situation and needs of patients and
their families upon request and liaise with the relevant medical
role of Thalassaemia Australia will continue to evolve in collaboration with
the state associations and will deal with thalassaemia issues in
the national and international context.