About Thalassaemia Australia

The Society, now operating under the Thalassaemia Australia (TA) banner will continue to represent the interests of all people in Australia affected by thalassaemia, either directly as a patient or carrier, or indirectly as a family member, carer or colleague or medical professional. TA will work towards extending its scope of operation nationally, but always in consultation (and where possible) in collaboration with other state societies in order to develop a cohesive and united thalassaemia voice.

The current constitution of Thalassaemia Australia does not automatically recognise members other state societies, unless they seek to become an individual member. Membership of Thalassaemia Australia is open to any person residing anywhere in Australia (this includes legal persons such as other incorporated associations).

Thalassaemia Australia's objectives are not to duplicate services offered by state societies, but to assist and support state societies and provide a national voice.

The key role of TA is to provide community education and information on thalassaemia and related haemoglobinopathies across Australia. Our focus remains in Victoria, where we have a Service Agreement with the Victorian Government. Where appropriate, information will be shared with other state associations and provided in a manner that is relevant throughout Australia. Information exchange will be actively pursued, and support to other state associations will continue to be provided. Where state thalassaemia associations are not active, Thalassaemia Australia will respond to the situation and needs of patients and their families upon request and liaise with the relevant medical practitioners.

The role of Thalassaemia Australia will continue to evolve in collaboration with the state associations and will deal with thalassaemia issues in thenational and international context.